Cycle yg menyedihkan

Lama tak update..

Tiba rasanya perlu mengupdate..bila yg bukan-bukan masih lg berlaku..

masih ada yg keliru..

masih ada yg tak faham..

masih ada lg yg menyogok kan bantal atas kepentingan diri sendiri di atas kekeliruan dan kebuntuan yg berlaku..eh tapi ada je suka dengar yg indah2 kan?

Sebagai admin Clubfoot Malaysia dan bagi mengelakkan bukan sebarangan orang yg join group kami, ada few questions yg wajib di jawab oleh ibu ayah / waris yg ingin menyertai support group kami.

saya akan minta penerangan dan juga gambar,,

maaf kami tak terima positional clubfoot dan juga masalah2 yg tidak berkaitan dgn clubfoot.yg mana show off gambar brace selain dr ponseti mmg kene pangkah laa awal2 😅

So recently yang datang nak join group agak mengecewakan.

1. Simen sahaja dah lebih 7x..ada yg lebih drpd 10x..dah kenapa tu?
2. Doktor kata tak perlu simen tapi pakai brace...doktor tu dah satu hal..yg kamu ikut tu dah kenapa??
3. Doktor suruh pakai brace tp kaki masih x lurus dan heel pon tak cantik..tapi dah teno ..acaner tu??
4. Brace selalu tercabut n dah tidak dpt 23 jam for 1st 3 months. Dah tu apsal x pulang kan balik brace tu kepada si penjual atau call doktor minta advise?
5. Brace kene ganti tak sampai 3 bulan...brace ni kene pakai bertahun2 tau..bukan setahun 2 je..so kenapa nak buang duit beli brace banyak kali??
6. Kaki tak lurus excited nak beli brace..tak study mana brace yg  lebih elok...main ikut je telephone no yg diberikan doctor...alih2 kaki anak tak ready..rasa tertipu...
7. Tukang jual brace jual tanpa memeriksa/menjenguk keadaan kaki anak yg nak membeli tu...🤦‍♀️🤦‍♀️
8. Banyak kes kene simen semua tapi brace dah beli so kene beli lain pula..membazir betul
9. Join berbulan2 group support tapi treatment unsuccessful. eh admin group tuh minat bulan bintang, unicorns dan rainbows..rasa mcm dia x minat nak tolong mantapkan lg rawatan n disiplin korang ni
10. Kata dah join support group tapi bila dah pakai brace anak boleh stay dlm few minutes je ..bila kita tengok kaki...kaki anak tuh tak ready lg ya pakai brace..
11. Masih ada yg keliru dengan positional clubfoot vs structural

12. sorry yg pakai selain mithcell ponseti brace dan dbb tuh korang stay je lah dlm group tu...

Satu je lah nak pesan...
Org meniaga ni selalu nak untung..dia tak peduli pon apa jadi dengan kaki anak korang tuh...
Takdenya dia nak tolong bgtau benda yg sebenar...
Atau maybe dia pon tatau atau jenis tak kisah...

Takpon minta tengok kaki anak dia dah elok ke belum?
Lain kali minta je buy back kalau kene start simen balik tp dah beli brace.

Rajin2 lah membaca pasal ponseti method ni. Tak rugi pon.
All info at ur finger tips...antara rajin dan tak rajin je..

Dah tak relevant nak claim ni anak 1st saya, saya tatau apa2 ttg ni, doctor tak inform apa2, sy down, etc
Sy pon 16 tahun dulu, anak first juga, internet tak byk info, doktor pon masih blur ttg ponseti method ni
Sekarang google je. info banyak keluar. Youtube pon dah banyak.

bila kita masih x redha dan tak membaca, selama itulah org lain akan ambil kesempatan...

last2 sendiri yg meroyan..

Antara nak dan tak nak
Antara rajin dan tak rajin
Antara redha dan kesal
So?
Kita hanya ada pilihan terbaik shj utk anak kita.
Berusaha lah mcm mana pon sebab ianya perihal anak kita...

so bacalah...banyak info dah ada dlm internet..

Done bebel...

Moon-shaped brace? seriously??

The cycle comes back...

Cycle mak ayah biarkan doktor simen lebih 10x..datang balik

Cycle mak ayah excited nak beli brace padahal kaki anak tak ready lagi..datang balik

Cycle promoter brace pro claimed brace dia bagus and ponseti approved ..datang balik

paling sedih...ARELI IS BACK!!

*credit photo by Sal..(pinjam sat ya sal..hehe)

ada yang kata their doctor claimed nothing wrong with moon shaped brace..

logically, ada ke normal people pakai kasut yg moon shaped sole?

ada tengok tak how Dr Ponseti invented Mitchell...ada sebab sole dia straight..

brace is for maintaining the correction..

Sorry doctor, yang recommend Areli, memang I TAK SETUJU..bangkang sekerasnya!!

Tengok tapak kaki Mitchell Ponseti kat bawah;

secara logiknya, sole kaki yg normal pon straight kan? kenapa nak disengetkan pula?

ada doktor claimed Areli lebih baik sebab permukaan nya keras not as Mitchell or brand 'L'..

apa kene mengena brace permukaan keras lebih baik untuk maintain correction?

seriously doktor? sorry lah saya tak boleh nak hadam..

Areli is for Metatarsus Adductus...physically pon tak sama mcm clubfoot...

why we need to wear this brace for clubfoot?

what is the purpose?

bracing for clubfoot is to maintain correction bukan nak re-shape the feet..

so, please tell those yang recommend Areli ni apa justification dia?

adakah recomended by Ponseti International?

kalu takde, shut it down..jangan merepek..

Kaki anak anda bukan bahan experiment! Ingat itu aje

Areli is back..vomit blood betul 

*face palm*

Referral

But my doctor said claimed he is using Ponseti method to treat my baby...

sounds familiar?

Yup. ..that was our doctor claimed to us also..

did you ask your doctor why the foot is not responding to the method?

Dr Syikin once told me they have done almost everything to help my daughter's feet but the feet is not responding well..

rupanya2...memang all doctors on that year ARE NOT FULLY trained on Ponseti Method but claimed they practised it...no wonder every appointment we received different feedback from different doctors...

What is the damage?

Relapse, unsuccessful treatment, casting more than 10x, causing hyper extended toes (noticed by Dr Pobseti himself) and took a year to manipulate n casting, and 2 tenotomy has been done.

So lesson is, whenever your doctor claimed they r using the ponseti method, please make sure, you read carefully the protocols stated in Ponseti International before you claimed one to me.

Even you say your brace is also Ponseti claimed brace, hmmm ..think twice..

As I hv not seen Dr Ponseti hold your brace before..so why should I believe you?

I've been in your shoes before and I have faced many challenges before you know.

So don't tell me...'my doctor also practise ponseti'...well after 14 years, I dont think so and I do not agree with you.. 🤷‍♂️

so kalau tanya which doctor yang I boleh recommend, which is the best hospital for clubfoot and what not..

I will tell you NONE in Malaysia..but boleh pergi yang ramai pergi iaitu HUKM, HKL & PPUM.

till then..good luck 

Teenager clubfoot progress

Happy New Year everyone😘💘💘

Entry kali ni nak bercerita ttg clubfoot remaja..yelah kan anak den dah masuk 15 tahun pada tahun 2022 ni..

Agak mengecewakan bila ada yg dah stop brace bila umur anak baru 3 tahun..

Even lah doctor tuh discharge, continue je lah pakai brace sekiranya tiada halangan..

Kalau relapse, tak pasal je kena pasang simen balik...tak ke aniaya anak ?

Ponseti International memang recommend pemakaian brace until umur anak 5 tahun..

Makanya, bila ramai dah tak pakai brace Lepas umur 3 tahun, ramai lah mengadu anak jalan kaki ke dalam (toeing in)

Maaf lah .. Anak sy pakai brace sampai umur 5 tahun..mmg discipline..

Kaki Dania pernah relapse akibat jahilnya doctor dan kami 14 tahun dulu..

So rawatan dah sampai ke Bangkok, takkan nak buatkan kaki anak relapse pula?

Keraskan hati..jalan terus..

Dia pandai buka brace, kita bangun dan pakaikan balik..

Kau culas, kaki cacat balik...nak ke?

It belum lg termasuk culas follow up..

Masing2 ada kekakangan, sy tahu..

Tapi cuba lah selesaikan once and for all..

Kaki anak clubfoot mmg boleh treated and boleh berjalan ya..

Penat dan dah berkali2 cakap..

Tapi ada juga yg lompat bintang bila anak dah start jalan..

Bila dah start rawatan, cara berjalan tuh yg membezakan anak u clubfoot atau tidak..

Ini latest kaki Dania...flatfoot kat normal feet belum hilang...

"beautiful right foot"-Dr Amnuay 2/1

Positional Clubfoot

'tapi puan, saya ada surat doktor yang mengatakan anak saya ada CTEV..'

'puan, anak kaki sy bengkok tak macam kaki baby lain'..

'anak saya dah dipakaikan kasut khas'

'boleh elok ke kaki anak saya?'

'doktor kata anak saya tak perlu simen'

'ohh takpe puan, kaki anak saya sudah pulih'

Allahuakhbar..

Dah berkali saya terangkan perbezaan positional vs structural clubfoot..

yang kami perjuangkan Ponseti Method for clubfoot ini adalah clubfoot yg involved structural kaki itu sendiri. So kalau positional kita tak perlu apply Ponseti Method..

Positional clubfoot keadaan tapak kaki normal dan flexible..

Manakala structural clubfoot, kakinya twisted, rigid, stiff, dan tak flexible.

Sebab tu saya minta gambar upon approval to join Clubfoot Malaysia.

kalau positional tak perlu pening kepala utk baca all the info ttg clubfoot..Sekadar nak tahu rupa dah cukup...Insya Allah u all tak akan lalui process yg lama macam kami..so berlapang dada..

anyway, both positional and structural clubfoot are TREATABLE.

So why buy from anyone else? - MD Orthopedics Mitchell Ponseti Brace

It has been 14 years that I have introduced Mitchell-Ponseti brace to Malaysian community..

Dr Amnuay yang tolong ukur masa tu, kami yang order straight from Iowa, US.

Dulu takde online shopping macam sekarang, and I remember we've  emailed to Brittany and we transferred money or payment was done using credit platform..2 kali je purchase...

Dengan Mitchell brace ni kita tak perlu ukur ngam2..Kita boleh lebihkan 1-3cm..boleh pakai lama sikit..Dania ads 2 braces je  dlm almost 5 tahun pakai..

So hangpa yang konon kene sampuk beli brace brand L yang claim lagi murah dari Mitchell Ponseti, tapi kene ganti selalu tuh nampak gaya dah kene tipu..😂😂

Brace Mitchell ni kita boleh ukur anggaran, and boleh lebihkan dlm 1-3cm..sy perasan ada yang kata terbeli besar..tapi jangan lah memandai yang baby umur 3 bulan u pegi beli size 6 size 10 buat apa??

boleh je baby setahun beli size 1 atau 2 bagi dia pakai sampai lencun...

2-3 tahun lepas saya ada jumpa imitation of Mitchell Ponseti ni yang claim konon dia pon sama bagus macam Mitchell Ponseti brace. Dorang claim effectiveness dia sama..siap dah ada distributor kat Malaysia ni...siap canang kat doktor they have ready stock..hahaha

Saya pon hairan but today, one of my clubfoot experience parents exposed that every single parts of Mitchell Brace ni dah dipatentkan..Maksudnya APA??!!! yang beli brand L tuh umpama beli barang imitation a.k.a barang tiruan..yang mana their testimonial pon boleh kita ragui..

8 out of 10 clubfoot physician in USA prescribed Mitchell Ponseti braces for their patient, so doktor-doktor yang claim tak tau Mitchell Ponseti ni sambung tidur lagi ke macam mana?

Sibuk pulak nak suruh patient pakai Dobbs Bar la apa lah...tapi treatment pon masih ke laut..

Daku bukan taksub tau tapi memang nyata..There is only ONE GOLD STANDARD PONSETI METHOD CLUBFOOT ORTHOTICS which is MITCHELL PONSETI !!

Mitchell Brace ni dah lama dah in the market.. dah patented on 2007 (dorang apply 2004) ..Dania start pakai 2008..

So, as dulu til now, and once again I am firm and confident, Mitchell Brace is the BEST CLUBFOOT BRACE ever!!

Memula hairan juga kenapa MD ni takde wakil jualan in Asia..Now baru faham..even pon dorang tu jauh, delivery timing was just 5-7 days from the date of purchase.

Oklah juga delivery timing dari u beli kat shopper or even I beli telekung dari Siti Khadijah pon 2 weeks baru sampai..

Disclaimer : Saya bukan wakil jualan Mitchell Ponseti ni..tapi saya sangat recommend braces ni..so jangan kene tipu...😉

Iowa Brace

 

Disclaimer : Ini bukan post berbayar..I tak perlu jual brace dan sampai sekarang I taktau price brace ni..I am here to assist you whatever I can..selama ni pon takde yg bayar i untuk buat blog ni..so??

(All photos credit in this post are from clubfoot solution website)

Apa benda pula Iowa Brace ni?

Another brace invented by Americans as improvement of Mitchell Brace. Dr Marcuende is one of the team.

Nak jadi cerita, last year I was waiting for MD Orthopedics to reply me on the issues highlighted by few parents mainly due to delivery leadtime. Yelah masa tuh Pandemic covid 19 ni baru start and delivery banyak delay.

So Ponseti International approached me and introduce me to Mr Todd Becker, the MD of Clubfoot Solutions. He is very humble and very passionate about clubfoot treatment. After few times communicate each other on clubfoot matters,  he sent me about 20 Iowa braces. He would like to distribute to whoever needed it most, and most importantly he wants our feedback.

So I decided to prioritise those who really serious on fixing her clubfoot child but can not afford to buy Mitchell, of course must be the member of Clubfoot Malaysia. I have approached few doctors to give me any contact of those in need.

So kelebihan Iowa Brace?

Ini dari pemerhatian saya as comparison to Mitchell Brace. 

✨ Iowa bar tidak mudah dibuka sendiri. However, ada satu clip ni kalau diletakkan ke lubang bar, ia akan mudah untuk mengeluarkan bar.

✨ Material dia adalah fabric dan selesa sebab ada padding yang bagus. Unlike Mitchell diperbuat dari sintetik kulit yang lembut. 

✨ Agak berat berbanding Mitchell. 

✨ Hanya memerlukan flexbar dan boleh dipakai dlm tempoh masa yg lama.

💕 dikatakan lebih murah dr Mitchell kerana it was mess production tetapi sampai sekarang saya tidak tahu berapa price brace ini.

Tapikan saya tetap prefer Mitchell Brace..😍

saya memang hardcore Mitchell Brace..Yang mana kata Dr Amnuay sendiri kata semua brace sama tuh maknanya korang tak kenal dia. He never condemn any brace but he told me Mitchell Brace is the most wonderful, magical n most effective brace. Teringat ada satu member ni siap copy paste ayat Dr Amnuay bagi kat i..

Semata sebab dia terbeli lain brand nak sedap kan hati...aduhaii 😜

Saya masih ada lagi few more size to give away but kena ikut syarat kelayakan..stok terhad..

Please email me if you are interested..